The Impact on Parents of Diagnosing PCD in Young Children

Primary ciliary dyskinesia (PCD) is an incurable, rare, inherited, chronic condition. Treatment includes the regular clearing of airway mucus, aggressive treatment of infections and management of hearing loss. Caregiver burden has not been explored, hence we interviewed 18 mothers and 6 fathers of c...

Descripción completa

Detalles Bibliográficos
Autores principales: Driessens, Corine, Carr, Siobhan, Clough, Edel, Copeland, Fiona, Dell, Sharon, Dixon, Lucy, Harris, Amanda, Knibb, Rebecca, Leigh, Margaret, Narayanan, Manjith, Redfern, Beatrice, Robson, Evie, Sawras, Michael, Schofield, Lynne, Sullivan, Kelli, Tipping, Myra, Tran, Nhu, Walker, Woolf, Lucas, Jane S., Behan, Laura
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9410029/
https://www.ncbi.nlm.nih.gov/pubmed/36013013
http://dx.doi.org/10.3390/jcm11164774

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9410029/
https://www.ncbi.nlm.nih.gov/pubmed/36013013
http://dx.doi.org/10.3390/jcm11164774

Ejemplares similares