Public preferences towards data management and governance in Swiss biobanks: results from a nationwide survey

OBJECTIVES: This article aims to measure the willingness of the Swiss public to participate in personalised health research, and their preferences regarding data management and governance. SETTING: Results are presented from a nationwide survey of members of the Swiss public. PARTICIPANTS: 15 106 ra...

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Detalles Bibliográficos
Autores principales: Brall, Caroline, Berlin, Claudia, Zwahlen, Marcel, Vayena, Effy, Egger, Matthias, Ormond, Kelly E
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Health Policy
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9422864/
https://www.ncbi.nlm.nih.gov/pubmed/36028266
http://dx.doi.org/10.1136/bmjopen-2022-060844

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9422864/
https://www.ncbi.nlm.nih.gov/pubmed/36028266
http://dx.doi.org/10.1136/bmjopen-2022-060844

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