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Public preferences towards data management and governance in Swiss biobanks: results from a nationwide survey
OBJECTIVES: This article aims to measure the willingness of the Swiss public to participate in personalised health research, and their preferences regarding data management and governance. SETTING: Results are presented from a nationwide survey of members of the Swiss public. PARTICIPANTS: 15 106 ra...
Autores principales: | Brall, Caroline, Berlin, Claudia, Zwahlen, Marcel, Vayena, Effy, Egger, Matthias, Ormond, Kelly E |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9422864/ https://www.ncbi.nlm.nih.gov/pubmed/36028266 http://dx.doi.org/10.1136/bmjopen-2022-060844 |
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