A new method for estimating under-recruitment of a patient registry: a case study with the Ohio Registry of Amyotrophic Lateral Sclerosis

We developed a disease registry to collect all incident amyotrophic lateral sclerosis (ALS) cases diagnosed during 2016–2018 in Ohio. Due to incomplete case ascertainment and limitations of the traditional capture-recapture method, we proposed a new method to estimate the number of cases not recruit...

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Detalles Bibliográficos
Autores principales: Li, Meifang, Shi, Xun, Gui, Jiang, Song, Chao, Andrew, Angeline S., Pioro, Erik P., Stommel, Elijah W., Tischbein, Maeve, Bradley, Walter G.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9428141/
https://www.ncbi.nlm.nih.gov/pubmed/36042373
http://dx.doi.org/10.1038/s41598-022-18944-9

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9428141/
https://www.ncbi.nlm.nih.gov/pubmed/36042373
http://dx.doi.org/10.1038/s41598-022-18944-9

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