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Experiencing illness as a crisis by the caregivers of individuals with Prader-Willi Syndrome

BACKGROUND: The behavioural phenotype of Prader-Willi Syndrome (PWS) implies a specific emotional and social-interactive burden for the caregivers of the individuals with PWS. The aim of the study was to perform an in-depth exploratory analysis of experiences of the familial caregivers of individual...

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Detalles Bibliográficos
Autores principales: Kowal, Katarzyna, Skrzypek, Michał, Kocki, Janusz
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9436047/
https://www.ncbi.nlm.nih.gov/pubmed/36048794
http://dx.doi.org/10.1371/journal.pone.0273295