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Experiencing illness as a crisis by the caregivers of individuals with Prader-Willi Syndrome
BACKGROUND: The behavioural phenotype of Prader-Willi Syndrome (PWS) implies a specific emotional and social-interactive burden for the caregivers of the individuals with PWS. The aim of the study was to perform an in-depth exploratory analysis of experiences of the familial caregivers of individual...
Autores principales: | Kowal, Katarzyna, Skrzypek, Michał, Kocki, Janusz |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9436047/ https://www.ncbi.nlm.nih.gov/pubmed/36048794 http://dx.doi.org/10.1371/journal.pone.0273295 |
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