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Health insurance literacy and health services access barriers in Niemann–Pick disease: the patient and caregiver voice

BACKGROUND: Major challenges to health care access include low health insurance literacy, prohibitive costs, and insurance barriers. Niemann–Pick disease (NPD), comprising acid sphingomyelinase deficiency (ASMD) and Niemann–Pick type C (NPC), is a group of rare, autosomal recessive, highly heterogen...

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Detalles Bibliográficos
Autores principales: Diaz, George A., Crowe, Joslyn, Hopkin, Justin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9438239/
https://www.ncbi.nlm.nih.gov/pubmed/36056366
http://dx.doi.org/10.1186/s13023-022-02490-8