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Survey on experiences and attitudes of parents toward disclosing information to children with genetic syndromes and their siblings in Japan
Many parents face the dilemma of when, how, and what to disclose to their children regarding their genetic conditions. The purpose of this study was to learn about the experiences of parents regarding disclosing information to their children with genetic conditions. A questionnaire was sent to 378 p...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Nature Publishing Group UK
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9458639/ https://www.ncbi.nlm.nih.gov/pubmed/36076048 http://dx.doi.org/10.1038/s41598-022-19447-3 |