Advancing qualitative rare disease research methodology: a comparison of virtual and in-person focus group formats

BACKGROUND: Rare disease research is hampered in part by the fact that patients are geographically dispersed. Rare disease patient communities are recognized for their use of the internet to learn about their condition and find peer-to-peer support. As such, web-based technologies offer promise for...

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Detalles Bibliográficos
Autores principales: Dwyer, Andrew A., Uveges, Melissa, Dockray, Samantha, Smith, Neil
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9465872/
https://www.ncbi.nlm.nih.gov/pubmed/36089593
http://dx.doi.org/10.1186/s13023-022-02522-3

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9465872/
https://www.ncbi.nlm.nih.gov/pubmed/36089593
http://dx.doi.org/10.1186/s13023-022-02522-3

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