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Advancing qualitative rare disease research methodology: a comparison of virtual and in-person focus group formats
BACKGROUND: Rare disease research is hampered in part by the fact that patients are geographically dispersed. Rare disease patient communities are recognized for their use of the internet to learn about their condition and find peer-to-peer support. As such, web-based technologies offer promise for...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9465872/ https://www.ncbi.nlm.nih.gov/pubmed/36089593 http://dx.doi.org/10.1186/s13023-022-02522-3 |