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Patient life aspirations in the context of Duchenne Muscular Dystrophy: a mixed-methods case–control study

BACKGROUND: Aspirations refer to wishes, ways of defining quality of life (QOL), and life goals. Living with chronic illness likely impacts a person’s life aspirations. Duchenne Muscular Dystrophy (DMD) is an inherited disorder characterized by the inevitable and progressive loss of ambulation and i...

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Detalles Bibliográficos
Autores principales: Schwartz, Carolyn E., Biletch, Elijah, Stuart, Richard B. B., Rapkin, Bruce D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9473464/
https://www.ncbi.nlm.nih.gov/pubmed/36104592
http://dx.doi.org/10.1186/s41687-022-00500-8