Identifying project topics and requirements in a citizen science project in rare diseases: a participative study

BACKGROUND: Due to their low prevalence (< 5 in 10,000), rare diseases are an important area of research, with the active participation of those affected being a key factor. In the Citizen Science project “SelEe” (Researching rare diseases in a citizen science approach), citizens collaborate with...

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Detalles Bibliográficos
Autores principales: Neff, Michaela, Storf, Holger, Vasseur, Jessica, Scheidt, Jörg, Zerr, Thomas, Khouri, Andreas, Schaaf, Jannik
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9476337/
https://www.ncbi.nlm.nih.gov/pubmed/36104743
http://dx.doi.org/10.1186/s13023-022-02514-3

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9476337/
https://www.ncbi.nlm.nih.gov/pubmed/36104743
http://dx.doi.org/10.1186/s13023-022-02514-3

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