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Identifying project topics and requirements in a citizen science project in rare diseases: a participative study
BACKGROUND: Due to their low prevalence (< 5 in 10,000), rare diseases are an important area of research, with the active participation of those affected being a key factor. In the Citizen Science project “SelEe” (Researching rare diseases in a citizen science approach), citizens collaborate with...
Autores principales: | Neff, Michaela, Storf, Holger, Vasseur, Jessica, Scheidt, Jörg, Zerr, Thomas, Khouri, Andreas, Schaaf, Jannik |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9476337/ https://www.ncbi.nlm.nih.gov/pubmed/36104743 http://dx.doi.org/10.1186/s13023-022-02514-3 |
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