The Charlotte Project: Recommendations for patient-reported outcomes and clinical parameters in Dravet syndrome through a qualitative and Delphi consensus study

OBJECTIVE: The appropriate management of patients with Dravet Syndrome (DS) is challenging, given the severity of symptoms and the burden of the disease for patients and caregivers. This study aimed to identify, through a qualitative methodology and a Delphi consensus-driven process, a set of recomm...

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Detalles Bibliográficos
Autores principales: Aledo-Serrano, Ángel, Mingorance, Ana, Villanueva, Vicente, García-Peñas, Juan José, Gil-Nagel, Antonio, Boronat, Susana, Aibar, JoséÁngel, Cámara, Silvia, Yániz, María José, Aras, Luis Miguel, Blanco, Bárbara, Sánchez-Carpintero, Rocío
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Neurology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9481303/
https://www.ncbi.nlm.nih.gov/pubmed/36119672
http://dx.doi.org/10.3389/fneur.2022.975034

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9481303/
https://www.ncbi.nlm.nih.gov/pubmed/36119672
http://dx.doi.org/10.3389/fneur.2022.975034

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