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Exploring Parents’ Concerns Regarding Long-Term Support and Living Arrangements for Their Children with Fragile X Syndrome

Given limited data regarding future planning specific to Fragile X Syndrome (FXS) individuals and the growing population of individuals within this community, this study sought to explore the concerns and challenges caregivers of individuals affected by FXS encounter when considering long-term suppo...

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Detalles Bibliográficos
Autores principales: Shuleski, Kaylynn, Zalles, Laura, Lozano, Reymundo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9498767/
https://www.ncbi.nlm.nih.gov/pubmed/36140821
http://dx.doi.org/10.3390/genes13091654