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Challenges and positive impact of rare cancer caregiving: A mixed-methods study of caregivers of patients with Erdheim-Chester disease and other histiocytic neoplasms

BACKGROUND: The importance of deriving benefit and meaning has been identified among cancer caregivers, but this has yet to be examined in the context of rare cancers. We sought to characterize unmet needs and experiences of caregivers of patients with Erdheim-Chester disease (ECD) and other histioc...

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Detalles Bibliográficos
Autores principales: Mitchell, Hannah-Rose, Applebaum, Allison J., Lynch, Kathleen A., Reiner, Anne S., Atkinson, Thomas M., Buthorn, Justin J., Sigler, Allison S., Bossert, Dana, Brewer, Kathleen, Corkran, Jessica, Fournier, Deanna, Panageas, Katherine S., Diamond, Eli L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9519468/
https://www.ncbi.nlm.nih.gov/pubmed/36188434
http://dx.doi.org/10.1016/j.eclinm.2022.101670