Clinical characteristics, healthcare use, and annual costs among patients with dystrophic epidermolysis bullosa

BACKGROUND: Dystrophic epidermolysis bullosa (DEB) is a serious, ultra-rare, genetic blistering disease that requires a multidisciplinary care team and lifelong, proactive disease management. To organize and optimize care, we comprehensively examined diagnoses, healthcare use, and annual costs in pa...

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Detalles Bibliográficos
Autores principales: Feinstein, James A., Bruckner, Anna L., Chastek, Benjamin, Anderson, Amy, Roman, Juan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9524120/
https://www.ncbi.nlm.nih.gov/pubmed/36175960
http://dx.doi.org/10.1186/s13023-022-02509-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9524120/
https://www.ncbi.nlm.nih.gov/pubmed/36175960
http://dx.doi.org/10.1186/s13023-022-02509-0

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