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Clinical characteristics, healthcare use, and annual costs among patients with dystrophic epidermolysis bullosa
BACKGROUND: Dystrophic epidermolysis bullosa (DEB) is a serious, ultra-rare, genetic blistering disease that requires a multidisciplinary care team and lifelong, proactive disease management. To organize and optimize care, we comprehensively examined diagnoses, healthcare use, and annual costs in pa...
Autores principales: | Feinstein, James A., Bruckner, Anna L., Chastek, Benjamin, Anderson, Amy, Roman, Juan |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9524120/ https://www.ncbi.nlm.nih.gov/pubmed/36175960 http://dx.doi.org/10.1186/s13023-022-02509-0 |
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