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Development of the Patient- and Observer-Reported PRUCISION Instruments to Assess Pruritus and Sleep Disturbance in Pediatric Patients with Cholestatic Liver Diseases

INTRODUCTION: Understanding how patients experience their disease is a vital step in optimal disease management, and patient- and observer-reported outcome (PRO and ObsRO, respectively) measures can add important details to clinical information that is obtained as novel treatments are developed. Ins...

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Detalles Bibliográficos
Autores principales: Gwaltney, Chad, Bean, Stephanie, Venerus, Meredith, Karlsson, Lisa, Warholic, Natalie, Kjems, Lise, Horn, Patrick
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9525401/
https://www.ncbi.nlm.nih.gov/pubmed/36066744
http://dx.doi.org/10.1007/s12325-022-02261-8