Blueprint for harmonising unstandardised disease registries to allow federated data analysis: prepare for the future

Real-world evidence from multinational disease registries is becoming increasingly important not only for confirming the results of randomised controlled trials, but also for identifying phenotypes, monitoring disease progression, predicting response to new drugs and early detection of rare side-eff...

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Detalles Bibliográficos
Autores principales: Kroes, Johannes A., Bansal, Aruna T., Berret, Emmanuelle, Christian, Nils, Kremer, Andreas, Alloni, Anna, Gabetta, Matteo, Marshall, Chris, Wagers, Scott, Djukanovic, Ratko, Porsbjerg, Celeste, Hamerlijnck, Dominique, Fulton, Olivia, ten Brinke, Anneke, Bel, Elisabeth H., Sont, Jacob K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2022
Materias:
Reviews
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9530887/
https://www.ncbi.nlm.nih.gov/pubmed/36199590
http://dx.doi.org/10.1183/23120541.00168-2022

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9530887/
https://www.ncbi.nlm.nih.gov/pubmed/36199590
http://dx.doi.org/10.1183/23120541.00168-2022

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