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Blueprint for harmonising unstandardised disease registries to allow federated data analysis: prepare for the future
Real-world evidence from multinational disease registries is becoming increasingly important not only for confirming the results of randomised controlled trials, but also for identifying phenotypes, monitoring disease progression, predicting response to new drugs and early detection of rare side-eff...
Autores principales: | Kroes, Johannes A., Bansal, Aruna T., Berret, Emmanuelle, Christian, Nils, Kremer, Andreas, Alloni, Anna, Gabetta, Matteo, Marshall, Chris, Wagers, Scott, Djukanovic, Ratko, Porsbjerg, Celeste, Hamerlijnck, Dominique, Fulton, Olivia, ten Brinke, Anneke, Bel, Elisabeth H., Sont, Jacob K. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
European Respiratory Society
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9530887/ https://www.ncbi.nlm.nih.gov/pubmed/36199590 http://dx.doi.org/10.1183/23120541.00168-2022 |
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