Parental experiences of having a child with CLN3 disease (juvenile Batten disease) and how these experiences relate to family resilience

BACKGROUND: CLN3 disease is a neurodegenerative condition presenting in the first decade of life typically leading to death in the third decade. The earliest symptom is rapidly progressive visual impairment followed by intellectual and motor impairments, epilepsy and behavioural disturbances. There...

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Detalles Bibliográficos
Autores principales: Krantz, Mattias, Malm, Emma, Darin, Niklas, Sofou, Kalliopi, Savvidou, Antri, Reilly, Colin, Boström, Petra
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Research Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9541062/
https://www.ncbi.nlm.nih.gov/pubmed/35233790
http://dx.doi.org/10.1111/cch.12993

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9541062/
https://www.ncbi.nlm.nih.gov/pubmed/35233790
http://dx.doi.org/10.1111/cch.12993

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