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Parental experiences of having a child with CLN3 disease (juvenile Batten disease) and how these experiences relate to family resilience
BACKGROUND: CLN3 disease is a neurodegenerative condition presenting in the first decade of life typically leading to death in the third decade. The earliest symptom is rapidly progressive visual impairment followed by intellectual and motor impairments, epilepsy and behavioural disturbances. There...
| Autores principales: | , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
John Wiley and Sons Inc.
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9541062/ https://www.ncbi.nlm.nih.gov/pubmed/35233790 http://dx.doi.org/10.1111/cch.12993 |