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Returning individual research results in international direct-to-participant genomic research: results from a 31-country study

This paper summarizes the results of a 31-country qualitative study of expert perspectives on the regulation of international “direct-to-participant” (DTP) genomic research. We outline how the practice of directly recruiting participants for genomic studies online complicates ethics and regulatory c...

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Detalles Bibliográficos
Autores principales: Lang, Michael, Zawati, Ma’n H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9553878/
https://www.ncbi.nlm.nih.gov/pubmed/35478220
http://dx.doi.org/10.1038/s41431-022-01103-z