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Children with a rare congenital genetic disorder: a systematic review of parent experiences
BACKGROUND: Caring for a child with a chronic disease may be demanding and stressful. When a child has a rare condition, the impact of care on parents is amplified due to the rarity of the diagnosis. In order to address the lack of generalized and synthesized knowledge regarding parents’ experiences...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2022
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9575260/ https://www.ncbi.nlm.nih.gov/pubmed/36253830 http://dx.doi.org/10.1186/s13023-022-02525-0 |