Parental Preferences about Policy Options Regarding Disclosure of Incidental Genetic Findings in Newborn Screening: Using Videos and the Internet to Educate and Obtain Input

Our objective was to develop and test a new approach to obtaining parental policy guidance about disclosure of incidental findings of newborn screening for cystic fibrosis (CF), including heterozygote carrier status and the conditions known as CFTR-related metabolic syndrome (CRMS) and/or cystic fib...

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Detalles Bibliográficos
Autores principales: Farrell, Michael H., Mooney, Katherine E., Laxova, Anita, Farrell, Philip M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9590039/
https://www.ncbi.nlm.nih.gov/pubmed/36278624
http://dx.doi.org/10.3390/ijns8040054

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9590039/
https://www.ncbi.nlm.nih.gov/pubmed/36278624
http://dx.doi.org/10.3390/ijns8040054

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