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Challenges faced by parents of screen-detected children with Cystic Fibrosis: The ICOS study

BACKGROUND: Informal care is an essential component of overall care for patients, particularly those with chronic illnesses such as Cystic Fibrosis (CF). This study aims to assess the level of caregiving burden faced by parents/caregivers of children with CF (CwCF) recruited to the Irish Comparative...

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Detalles Bibliográficos
Autores principales: Bhatnagar, R, Linnane, B, Herzig, M, Ni Chroinin, M, Cox, D, Elnazir, B, Segurado, R, Kirwan, L, Southern, KW, Fitzpatrick, P
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9593939/
http://dx.doi.org/10.1093/eurpub/ckac131.214