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Embedding lived experience into mental health academic research organizations: Critical reflections

BACKGROUND: As part of a growing emphasis on engaging people with lived experience of mental health conditions in mental health research, there are increasing calls to consider and embed lived experience throughout academic research institutes. This extends beyond the engagement of lay patients and ...

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Autores principales: Hawke, Lisa D., Sheikhan, Natasha Y., Jones, Nev, Slade, Mike, Soklaridis, Sophie, Wells, Samantha, Castle, David
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615091/
https://www.ncbi.nlm.nih.gov/pubmed/35999670
http://dx.doi.org/10.1111/hex.13586
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author Hawke, Lisa D.
Sheikhan, Natasha Y.
Jones, Nev
Slade, Mike
Soklaridis, Sophie
Wells, Samantha
Castle, David
author_facet Hawke, Lisa D.
Sheikhan, Natasha Y.
Jones, Nev
Slade, Mike
Soklaridis, Sophie
Wells, Samantha
Castle, David
author_sort Hawke, Lisa D.
collection PubMed
description BACKGROUND: As part of a growing emphasis on engaging people with lived experience of mental health conditions in mental health research, there are increasing calls to consider and embed lived experience throughout academic research institutes. This extends beyond the engagement of lay patients and also considers the potential roles of academic researchers with lived experience. When the lived experience of academic researchers is applied to academic work, there is the potential to improve the relevance of the research, while destigmatizing mental illness within academia. However, there are different and often contrasting perspectives on the way a lived experience academic researcher initiative should be implemented. OBJECTIVES: This article describes some of the key issues to be considered when planning an initiative that leverages and values the lived experience of academic researchers, including the advantages and disadvantages of each potential approach. DISCUSSION & RECOMMENDATIONS: Institutions are encouraged to reflect on the ways that they might support and value lived experience among academic researchers. In developing any such initiative, institutions are encouraged to be transparent about their objectives and values, undertake a careful planning process, involve researchers with lived experience from the outset and consistently challenge the stigma experienced by academic researchers with lived experience. PATIENT OR PUBLIC CONTRIBUTION: Multiple authors are academic researchers with lived experience of mental health conditions.
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spelling pubmed-96150912022-10-31 Embedding lived experience into mental health academic research organizations: Critical reflections Hawke, Lisa D. Sheikhan, Natasha Y. Jones, Nev Slade, Mike Soklaridis, Sophie Wells, Samantha Castle, David Health Expect Regular Articles BACKGROUND: As part of a growing emphasis on engaging people with lived experience of mental health conditions in mental health research, there are increasing calls to consider and embed lived experience throughout academic research institutes. This extends beyond the engagement of lay patients and also considers the potential roles of academic researchers with lived experience. When the lived experience of academic researchers is applied to academic work, there is the potential to improve the relevance of the research, while destigmatizing mental illness within academia. However, there are different and often contrasting perspectives on the way a lived experience academic researcher initiative should be implemented. OBJECTIVES: This article describes some of the key issues to be considered when planning an initiative that leverages and values the lived experience of academic researchers, including the advantages and disadvantages of each potential approach. DISCUSSION & RECOMMENDATIONS: Institutions are encouraged to reflect on the ways that they might support and value lived experience among academic researchers. In developing any such initiative, institutions are encouraged to be transparent about their objectives and values, undertake a careful planning process, involve researchers with lived experience from the outset and consistently challenge the stigma experienced by academic researchers with lived experience. PATIENT OR PUBLIC CONTRIBUTION: Multiple authors are academic researchers with lived experience of mental health conditions. John Wiley and Sons Inc. 2022-08-23 2022-10 /pmc/articles/PMC9615091/ /pubmed/35999670 http://dx.doi.org/10.1111/hex.13586 Text en © 2022 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Regular Articles
Hawke, Lisa D.
Sheikhan, Natasha Y.
Jones, Nev
Slade, Mike
Soklaridis, Sophie
Wells, Samantha
Castle, David
Embedding lived experience into mental health academic research organizations: Critical reflections
title Embedding lived experience into mental health academic research organizations: Critical reflections
title_full Embedding lived experience into mental health academic research organizations: Critical reflections
title_fullStr Embedding lived experience into mental health academic research organizations: Critical reflections
title_full_unstemmed Embedding lived experience into mental health academic research organizations: Critical reflections
title_short Embedding lived experience into mental health academic research organizations: Critical reflections
title_sort embedding lived experience into mental health academic research organizations: critical reflections
topic Regular Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615091/
https://www.ncbi.nlm.nih.gov/pubmed/35999670
http://dx.doi.org/10.1111/hex.13586
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