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Embedding lived experience into mental health academic research organizations: Critical reflections
BACKGROUND: As part of a growing emphasis on engaging people with lived experience of mental health conditions in mental health research, there are increasing calls to consider and embed lived experience throughout academic research institutes. This extends beyond the engagement of lay patients and ...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615091/ https://www.ncbi.nlm.nih.gov/pubmed/35999670 http://dx.doi.org/10.1111/hex.13586 |
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author | Hawke, Lisa D. Sheikhan, Natasha Y. Jones, Nev Slade, Mike Soklaridis, Sophie Wells, Samantha Castle, David |
author_facet | Hawke, Lisa D. Sheikhan, Natasha Y. Jones, Nev Slade, Mike Soklaridis, Sophie Wells, Samantha Castle, David |
author_sort | Hawke, Lisa D. |
collection | PubMed |
description | BACKGROUND: As part of a growing emphasis on engaging people with lived experience of mental health conditions in mental health research, there are increasing calls to consider and embed lived experience throughout academic research institutes. This extends beyond the engagement of lay patients and also considers the potential roles of academic researchers with lived experience. When the lived experience of academic researchers is applied to academic work, there is the potential to improve the relevance of the research, while destigmatizing mental illness within academia. However, there are different and often contrasting perspectives on the way a lived experience academic researcher initiative should be implemented. OBJECTIVES: This article describes some of the key issues to be considered when planning an initiative that leverages and values the lived experience of academic researchers, including the advantages and disadvantages of each potential approach. DISCUSSION & RECOMMENDATIONS: Institutions are encouraged to reflect on the ways that they might support and value lived experience among academic researchers. In developing any such initiative, institutions are encouraged to be transparent about their objectives and values, undertake a careful planning process, involve researchers with lived experience from the outset and consistently challenge the stigma experienced by academic researchers with lived experience. PATIENT OR PUBLIC CONTRIBUTION: Multiple authors are academic researchers with lived experience of mental health conditions. |
format | Online Article Text |
id | pubmed-9615091 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-96150912022-10-31 Embedding lived experience into mental health academic research organizations: Critical reflections Hawke, Lisa D. Sheikhan, Natasha Y. Jones, Nev Slade, Mike Soklaridis, Sophie Wells, Samantha Castle, David Health Expect Regular Articles BACKGROUND: As part of a growing emphasis on engaging people with lived experience of mental health conditions in mental health research, there are increasing calls to consider and embed lived experience throughout academic research institutes. This extends beyond the engagement of lay patients and also considers the potential roles of academic researchers with lived experience. When the lived experience of academic researchers is applied to academic work, there is the potential to improve the relevance of the research, while destigmatizing mental illness within academia. However, there are different and often contrasting perspectives on the way a lived experience academic researcher initiative should be implemented. OBJECTIVES: This article describes some of the key issues to be considered when planning an initiative that leverages and values the lived experience of academic researchers, including the advantages and disadvantages of each potential approach. DISCUSSION & RECOMMENDATIONS: Institutions are encouraged to reflect on the ways that they might support and value lived experience among academic researchers. In developing any such initiative, institutions are encouraged to be transparent about their objectives and values, undertake a careful planning process, involve researchers with lived experience from the outset and consistently challenge the stigma experienced by academic researchers with lived experience. PATIENT OR PUBLIC CONTRIBUTION: Multiple authors are academic researchers with lived experience of mental health conditions. John Wiley and Sons Inc. 2022-08-23 2022-10 /pmc/articles/PMC9615091/ /pubmed/35999670 http://dx.doi.org/10.1111/hex.13586 Text en © 2022 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Regular Articles Hawke, Lisa D. Sheikhan, Natasha Y. Jones, Nev Slade, Mike Soklaridis, Sophie Wells, Samantha Castle, David Embedding lived experience into mental health academic research organizations: Critical reflections |
title | Embedding lived experience into mental health academic research organizations: Critical reflections |
title_full | Embedding lived experience into mental health academic research organizations: Critical reflections |
title_fullStr | Embedding lived experience into mental health academic research organizations: Critical reflections |
title_full_unstemmed | Embedding lived experience into mental health academic research organizations: Critical reflections |
title_short | Embedding lived experience into mental health academic research organizations: Critical reflections |
title_sort | embedding lived experience into mental health academic research organizations: critical reflections |
topic | Regular Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615091/ https://www.ncbi.nlm.nih.gov/pubmed/35999670 http://dx.doi.org/10.1111/hex.13586 |
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