Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol

INTRODUCTION: Developmental and epileptic encephalopathies (DEEs) are rare epilepsy conditions that collectively impact 1 in 2000 children. They are highly genetically heterogeneous, resulting in significant barriers to accurate and adequate information for caregivers. This can lead to increased dis...

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Detalles Bibliográficos
Autores principales: Robertson, Eden G, Kelada, Lauren, Best, Stephanie, Goranitis, I, Grainger, Natalie, Le Marne, Fleur, Pierce, Kristine, Nevin, Suzanne M, Macintosh, Rebecca, Beavis, Erin, Sachdev, Rani, Bye, Annie, Palmer, Elizabeth E
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Patient-Centred Medicine
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615979/
https://www.ncbi.nlm.nih.gov/pubmed/36288836
http://dx.doi.org/10.1136/bmjopen-2022-063249

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615979/
https://www.ncbi.nlm.nih.gov/pubmed/36288836
http://dx.doi.org/10.1136/bmjopen-2022-063249

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