Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trial

BACKGROUND: More people with rare diseases likely receive disease education and emotional and practical support from peer-led support groups than any other way. Most rare-disease support groups are delivered outside of the health care system by untrained leaders. Potential benefits may not be achiev...

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Detalles Bibliográficos
Autores principales: Thombs, Brett D., Levis, Brooke, Carrier, Marie-Eve, Dyas, Laura, Nordlund, Julia, Tao, Lydia, Aguila, Kylene, Bourgeault, Angelica, Konrad, Violet, Sauvé, Maureen, Connolly, Kerri, Henry, Richard S., Østbø, Nora, Levis, Alexander W., Kwakkenbos, Linda, Malcarne, Vanessa L., El-Baalbaki, Ghassan, Hudson, Marie, Wurz, Amanda, Culos-Reed, S. Nicole, Platt, Robert W., Benedetti, Andrea
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9616616/
https://www.ncbi.nlm.nih.gov/pubmed/36307891
http://dx.doi.org/10.1186/s13023-022-02552-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9616616/
https://www.ncbi.nlm.nih.gov/pubmed/36307891
http://dx.doi.org/10.1186/s13023-022-02552-x

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