Qualitative development of the PROMIS Profile v1.0-Familial Chylomicronemia Syndrome (FCS) 28

PURPOSE: Familial chylomicronemia syndrome (FCS) is a rare genetic disorder characterized by high triglyceride levels, significant disease burden, and negative impacts on health-related quality of life. This project aimed to create a PROMIS-based patient-reported outcome measure that represents vali...

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Detalles Bibliográficos
Autores principales: Kaiser, Karen, Fox, Rina S., Perschon, Chelsea, Vera-Llonch, Montserrat, Alonso, Jordi, Cubells, Laia, Cella, David
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9618409/
https://www.ncbi.nlm.nih.gov/pubmed/36310187
http://dx.doi.org/10.1007/s11136-022-03266-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9618409/
https://www.ncbi.nlm.nih.gov/pubmed/36310187
http://dx.doi.org/10.1007/s11136-022-03266-0

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