PSAT102 Qualitative Research in Children and Parents of Children with Achondroplasia to Cognitively Debrief Three Patient-Reported Outcome Measures and Confirm the Content Validity of a Clinical-Assessed Measure

BACKGROUND: Achondroplasia (ACH) is the most common non-lethal form of skeletal dysplasia affecting 1 in 25,000 live births. Individuals with ACH experience various medical, emotional, and functional challenges during their lifetime. Qualitative research was conducted to evaluate the content, clarit...

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Detalles Bibliográficos
Autores principales: Muslimova, Elena, Hoover-Fong, Julie, Mathias, Susan D, Savarirayan, Ravi, Crews, Chandler, Alves, Inês, Medicine, Veterinary, Iruretagoyena, Susana Noval, Haider, Amer, Cho, Terry, Lee, Anne, Colwell, Hilary H
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Pediatric Endocrinology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9625443/
http://dx.doi.org/10.1210/jendso/bvac150.1307

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9625443/
http://dx.doi.org/10.1210/jendso/bvac150.1307

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