Seltene Erkrankungen und Digitalisierung im Kontext des Nationalen Aktionsbündnisses für Menschen mit Seltenen Erkrankungen (NAMSE)

People with rare diseases face specific challenges within the healthcare system. Due to the rarity of the individual diseases, both medical care and research are made difficult for structural, medical, and economic reasons. In 2010, the National Action League for People with Rare Diseases (NAMSE) wa...

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Detalles Bibliográficos
Autores principales: Wessel, Theda, Heuing, Katharina, Schlangen, Miriam, Schnieders, Birgit, Algermissen, Markus
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2022
Materias:
Leitthema
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9636091/
https://www.ncbi.nlm.nih.gov/pubmed/36239769
http://dx.doi.org/10.1007/s00103-022-03597-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9636091/
https://www.ncbi.nlm.nih.gov/pubmed/36239769
http://dx.doi.org/10.1007/s00103-022-03597-w

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