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A Survey of Research Participants’ Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers

Background: Real-world data (RWD) privacy is an increasingly complex topic within the scope of personalized medicine, as it implicates several sources of data. Objective: To assess how privacy-related experiences, when adjusted for age and education level, may shape adult research participants’ will...

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Detalles Bibliográficos
Autores principales: Hendricks-Sturrup, Rachele M., Zhang, Fang, Lu, Christine Y.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9696408/
https://www.ncbi.nlm.nih.gov/pubmed/36422098
http://dx.doi.org/10.3390/jpm12111922