Patient journey experiences may contribute to improve healthcare for patients with rare endocrine diseases

Patient journeys are instruments developed by EURORDIS, The Voice of Rare Disease Patients in Europe, to collect patients’ experiences; they may identify gaps and areas deserving improvement, as well as elements positively considered by affected persons. As with other patient-reported experiences, t...

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Detalles Bibliográficos
Autores principales: Webb, Susan M, Kristensen, Jette, Nordenström, Anna, Vitali, Diana, Amodru, Vincent, Wiehe, Lenja Katharina, Bolz-Johnson, Matt
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Bioscientifica Ltd 2022
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9716367/
https://www.ncbi.nlm.nih.gov/pubmed/36228311
http://dx.doi.org/10.1530/EC-22-0385

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9716367/
https://www.ncbi.nlm.nih.gov/pubmed/36228311
http://dx.doi.org/10.1530/EC-22-0385

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