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Patient journey experiences may contribute to improve healthcare for patients with rare endocrine diseases
Patient journeys are instruments developed by EURORDIS, The Voice of Rare Disease Patients in Europe, to collect patients’ experiences; they may identify gaps and areas deserving improvement, as well as elements positively considered by affected persons. As with other patient-reported experiences, t...
Autores principales: | Webb, Susan M, Kristensen, Jette, Nordenström, Anna, Vitali, Diana, Amodru, Vincent, Wiehe, Lenja Katharina, Bolz-Johnson, Matt |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Bioscientifica Ltd
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9716367/ https://www.ncbi.nlm.nih.gov/pubmed/36228311 http://dx.doi.org/10.1530/EC-22-0385 |
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