Carer burden in rare inherited diseases: a literature review and conceptual model

BACKGROUND: Carers of people living with rare diseases report heavy burden and a plethora of unmet needs. A previous parental supportive care needs framework has described the needs of parents of children living with rare diseases, but it is not specific to rare inherited diseases (RIDs) and does no...

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Detalles Bibliográficos
Autores principales: Sandilands, Kerry, Williams, Angela, Rylands, Angela J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9733280/
https://www.ncbi.nlm.nih.gov/pubmed/36494728
http://dx.doi.org/10.1186/s13023-022-02561-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9733280/
https://www.ncbi.nlm.nih.gov/pubmed/36494728
http://dx.doi.org/10.1186/s13023-022-02561-w

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