Cargando…
Carer burden in rare inherited diseases: a literature review and conceptual model
BACKGROUND: Carers of people living with rare diseases report heavy burden and a plethora of unmet needs. A previous parental supportive care needs framework has described the needs of parents of children living with rare diseases, but it is not specific to rare inherited diseases (RIDs) and does no...
| Autores principales: | , , |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2022
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9733280/ https://www.ncbi.nlm.nih.gov/pubmed/36494728 http://dx.doi.org/10.1186/s13023-022-02561-w |