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Humanistic Burden of Huntington Disease: Evidence From the Huntington Disease Burden of Illness Study

BACKGROUND AND OBJECTIVES: Huntington disease (HD) is a rare, inherited, and highly complex neurodegenerative disorder with no currently approved disease-modifying treatments. We investigated the effect of HD on health-related quality of life and other patient-reported outcomes in the Huntington...

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Detalles Bibliográficos
Autores principales: Rodriguez Santana, Idaira, Frank, Samuel, Doherty, Maria, Willock, Rosa, Hamilton, Jamie, Hubberstey, Hayley, Stanley, Cath, Vetter, Louise, Winkelmann, Michaela, Dolmetsch, Ricardo E., Li, Nanxin, Ratsch, Sarah, Ali, Talaha M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9757103/
https://www.ncbi.nlm.nih.gov/pubmed/36540140
http://dx.doi.org/10.1212/CPJ.0000000000200095