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Humanistic Burden of Huntington Disease: Evidence From the Huntington Disease Burden of Illness Study
BACKGROUND AND OBJECTIVES: Huntington disease (HD) is a rare, inherited, and highly complex neurodegenerative disorder with no currently approved disease-modifying treatments. We investigated the effect of HD on health-related quality of life and other patient-reported outcomes in the Huntington...
Autores principales: | Rodriguez Santana, Idaira, Frank, Samuel, Doherty, Maria, Willock, Rosa, Hamilton, Jamie, Hubberstey, Hayley, Stanley, Cath, Vetter, Louise, Winkelmann, Michaela, Dolmetsch, Ricardo E., Li, Nanxin, Ratsch, Sarah, Ali, Talaha M. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Lippincott Williams & Wilkins
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9757103/ https://www.ncbi.nlm.nih.gov/pubmed/36540140 http://dx.doi.org/10.1212/CPJ.0000000000200095 |
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