Parental Burden and Quality of Life in 5q-SMA Diagnosed by Newborn Screening

The aim of this study was to assess the psychosocial burden in parents of children with spinal muscular atrophy (SMA), detected by newborn screening (NBS), for which first pilot projects started in January 2018 in Germany. The survey, performed 1–2 years after children’s diagnosis of SMA via NBS, in...

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Detalles Bibliográficos
Autores principales: Kölbel, Heike, Modler, Laura, Blaschek, Astrid, Schara-Schmidt, Ulrike, Vill, Katharina, Schwartz, Oliver, Müller-Felber, Wolfgang
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9776462/
https://www.ncbi.nlm.nih.gov/pubmed/36553273
http://dx.doi.org/10.3390/children9121829

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9776462/
https://www.ncbi.nlm.nih.gov/pubmed/36553273
http://dx.doi.org/10.3390/children9121829

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