The psychosocial situation of families caring for children with rare diseases during the COVID-19 pandemic: results of a cross-sectional online survey

BACKGROUND: The COVID-19 pandemic is affecting many areas of life and has posed additional strains on the highly vulnerable group of caregivers of children with rare diseases (RDs). The psychosocial situation of the family caregivers deserves more attention, both in research and practice. The curren...

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Detalles Bibliográficos
Autores principales: Rihm, Lydia, Dreier, Mareike, Rezvani, Farhad, Wiegand-Grefe, Silke, Dirmaier, Jörg
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9791975/
https://www.ncbi.nlm.nih.gov/pubmed/36572906
http://dx.doi.org/10.1186/s13023-022-02595-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9791975/
https://www.ncbi.nlm.nih.gov/pubmed/36572906
http://dx.doi.org/10.1186/s13023-022-02595-0

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