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The psychosocial situation of families caring for children with rare diseases during the COVID-19 pandemic: results of a cross-sectional online survey
BACKGROUND: The COVID-19 pandemic is affecting many areas of life and has posed additional strains on the highly vulnerable group of caregivers of children with rare diseases (RDs). The psychosocial situation of the family caregivers deserves more attention, both in research and practice. The curren...
Autores principales: | Rihm, Lydia, Dreier, Mareike, Rezvani, Farhad, Wiegand-Grefe, Silke, Dirmaier, Jörg |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9791975/ https://www.ncbi.nlm.nih.gov/pubmed/36572906 http://dx.doi.org/10.1186/s13023-022-02595-0 |
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