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Victorian evolution of inherited retinal diseases natural history registry (VENTURE study): Rationale, methodology and initial participant characteristics

BACKGROUND: Emerging treatments are being developed for inherited retinal diseases, requiring a clear understanding of natural progression and a database of potential participants for clinical trials. This article describes the rationale, study design and methodology of the Victorian Evolution of in...

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Detalles Bibliográficos
Autores principales: Britten‐Jones, Alexis Ceecee, O'Hare, Fleur, Edwards, Thomas L., Ayton, Lauren N.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons Australia, Ltd 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9796389/
https://www.ncbi.nlm.nih.gov/pubmed/35621151
http://dx.doi.org/10.1111/ceo.14110