Novel mixed-method, inclusive protocol involving global key stakeholders, including carers as experts, to co-develop relevant Caregiver-Reported Outcome Domains (CRODs) in skin disease

INTRODUCTION: Ichthyoses comprise a heterogenous group of rare genetic skin disorders that involves the entire skin surface, often with additional syndromic features, and pose many clinical challenges. Without curative intervention, the mainstay of life-long symptom management is supportive in natur...

Descripción completa

Detalles Bibliográficos
Autores principales: Walsh, Carleen, Leavey, Gerard, Mc Laughlin, Marian, Paller, Amy S, Irvine, Alan D, Browne, Fiona, Mellerio, Jemima E, Bewley, Anthony
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Dermatology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9853252/
https://www.ncbi.nlm.nih.gov/pubmed/36657764
http://dx.doi.org/10.1136/bmjopen-2022-068893

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9853252/
https://www.ncbi.nlm.nih.gov/pubmed/36657764
http://dx.doi.org/10.1136/bmjopen-2022-068893

Ejemplares similares