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A patient advocating for transparent science in rare disease research

300 million people live with at least one of 6,000 rare diseases worldwide. However, rare disease research is not always reviewed with scrutiny, making it susceptible to what the author refers to as nontransparent science. Nontransparent science can obscure animal model flaws, misguide medicine regu...

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Detalles Bibliográficos
Autor principal: Yang, Richard Rui
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9854194/
https://www.ncbi.nlm.nih.gov/pubmed/36658594
http://dx.doi.org/10.1186/s13023-022-02557-6