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A patient advocating for transparent science in rare disease research
300 million people live with at least one of 6,000 rare diseases worldwide. However, rare disease research is not always reviewed with scrutiny, making it susceptible to what the author refers to as nontransparent science. Nontransparent science can obscure animal model flaws, misguide medicine regu...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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BioMed Central
2023
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9854194/ https://www.ncbi.nlm.nih.gov/pubmed/36658594 http://dx.doi.org/10.1186/s13023-022-02557-6 |