Health-Related Quality of Life in Spinal Muscular Atrophy Patients and Their Caregivers—A Prospective, Cross-Sectional, Multi-Center Analysis

Spinal muscular atrophy (SMA) is a disabling disease that affects not only the patient’s health-related quality of life (HRQoL), but also causes a high caregiver burden (CGB). The aim of this study was to evaluate HRQoL, CGB, and their predictors in SMA. In two prospective, cross-sectional, and mult...

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Detalles Bibliográficos
Autores principales: Wohnrade, Camilla, Velling, Ann-Kathrin, Mix, Lucas, Wurster, Claudia D., Cordts, Isabell, Stolte, Benjamin, Zeller, Daniel, Uzelac, Zeljko, Platen, Sophia, Hagenacker, Tim, Deschauer, Marcus, Lingor, Paul, Ludolph, Albert C., Lulé, Dorothée, Petri, Susanne, Osmanovic, Alma, Schreiber-Katz, Olivia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9857112/
https://www.ncbi.nlm.nih.gov/pubmed/36672091
http://dx.doi.org/10.3390/brainsci13010110

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9857112/
https://www.ncbi.nlm.nih.gov/pubmed/36672091
http://dx.doi.org/10.3390/brainsci13010110

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