Perspective of Patients and Stakeholders as Members of a Research Team

Systemic sclerosis (SSc) is a rare orphan disease, characterized by skin thickening, vascular insufficiency, and fibrosis of internal organs. SSc affects about 100,000 people in the United States. This study explored perceived benefits and challenges of patient partners and stakeholders, who were te...

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Detalles Bibliográficos
Autores principales: Poole, Janet L, Newbill, Sharon L
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Research Brief
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9869235/
https://www.ncbi.nlm.nih.gov/pubmed/36698624
http://dx.doi.org/10.1177/23743735231151768

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9869235/
https://www.ncbi.nlm.nih.gov/pubmed/36698624
http://dx.doi.org/10.1177/23743735231151768

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