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Care, burden and self-described positive aspects of caring in amyotrophic lateral sclerosis: an exploratory, longitudinal, mixed-methods study

OBJECTIVES: To explore factors associated with care burden and the self-described positive aspects of caring for a person living with amyotrophic lateral sclerosis (ALS) over time. DESIGN: Exploratory longitudinal mixed-methods study. SETTING: A national multidisciplinary tertiary clinic in Dublin,...

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Detalles Bibliográficos
Autores principales: Conroy, Éilís, Kennedy, Polly, Heverin, Mark, Hardiman, Orla, Galvin, Miriam
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9872468/
https://www.ncbi.nlm.nih.gov/pubmed/36669844
http://dx.doi.org/10.1136/bmjopen-2022-064254