Exploring the values, preferences, and information needs of patients with NKX2-1-related disorders: A qualitative study protocol

BACKGROUND: NKX2-1-related disorders have a prevalence of 1:500,000 and are therefore considered a rare condition according to the European Commission’s definition. The European Reference Network of Rare Neurological Disorders is developing the first clinical practice guideline on the management of...

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Detalles Bibliográficos
Autores principales: Martín-Gómez, Carmen, Ortigoza-Escobar, Juan Dario, Nou-Fontanet, Laia, Molina-Linde, Juan M., Bachoud-Lévi, Anne-Catherine, Léger, Juliane, Blasco-Amaro, Juan Antonio
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2023
Materias:
Study Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9910649/
https://www.ncbi.nlm.nih.gov/pubmed/36758103
http://dx.doi.org/10.1371/journal.pone.0281573

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9910649/
https://www.ncbi.nlm.nih.gov/pubmed/36758103
http://dx.doi.org/10.1371/journal.pone.0281573

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